Vision
Improved outcomes for Canadians with neurodevelopmental differences and childhood-onset disabilities.
Mission
Expand Canadian clinical trials capacity for children, youth and adults with neurodevelopmental conditions and adverse neurodevelopmental experiences with childhood-onset disabilities.
Scientific Committee
Scientific Direction
Oversee and guide the scientific strategy for projects.
Research Priorities
Identify gaps and set priorities
Innovation
Promote scientific innovation: novel study designs and outcome measures.
Partnerships
Establish collaborations with other networks.
Statistical Oversight
Take ownership of the statistical analysis plans.
Patient Engagement
Purpose and Approach
Committee Composition
- Includes the iKT broker.
- Representatives from patient groups with lived experience, including family members, youth, and adults.
- Members from community advocacy organizations.
- A representative from the Leadership Committee (LC).
Leadership
- Co-led by a clinician scientist experienced in partnering with patients, families, and community organizations.
- Co-led by a community partner
Current Membership
Leads
- D Singal (Autism Alliance & University of Alberta
- K Kelm (Canadian fragile X foundation)
- S Munce (University of Toronto)
Members
- Ontario federation for Cerebral Palsy (OFCP)
- Autism Alliance of Canada
- Canadian Fragile X Foundation
- Foundation for Prader Willi Research,Canada
- Ontario Rett Syndrome Association
- Canadian Angleman Syndrome Associationn
- March of Dimes
Patient Advisors
- C Gaboury
- C Putterman
Youth Advisors
- A Cosgrove
- N Barnett
Sites and Contacts
Ontario
Holland Bloorview Kids Rehabilitation Hospital; University of Toronto
Evdokia Anagnostou, MD, FRCP(C)
VP Research, Holland Bloorview Kids Rehabilitation Hospital; Director, Bloorview Research Professor, Temerty Faculty of Medicine, Department of Pediatrics, University of Toronto; Dr Stuart D. Sims Chair in Autism
Fax: 416-422-7045
Hospital for Sick Children; University of Toronto
Anna Heath, MMath, PhD
Scientist, Child Health Evaluative Sciences; Assistant Professor, Division of Biostatistics, Dalla Lana School of Public Health
Tel: 416-813-7654
Email: anna.heath@sickkids.ca
Jennifer Crosbie, PhD, C. Psych
Psychologist, Department of Psychiatry; Susan J. Bradley Health Clinician Scientist; Associate Scientist, Research Institute
Tel: 416-813-7681
Email: jennifer.crosbie@sickkids.ca
McMaster University-Hamilton
Elisabetta Trinari, MD, MSc
Assistant Professor, McMaster University – Pediatrics (Developmental Pediatrics)
Email: trinarie@mcmaster.ca
Julia Frei MD, MScH (Epi), FRCPC
Developmental Pediatrician and Assistant Professor (Department of Pediatrics)
Email: freij@mcmaster.ca
Western University, Lawson Research Institute-London
Rob Nicolson, MD, FRCPC
Associate Professor, Department of Psychiatry and Chair of the Developmental Disabilities Program, Western University
Tel: (519) 685-8427
Email: Rnicolso@uwo.ca
Janys Lim, MD
Developmental Pediatrician (Departments of Pediatrics and Psychiatry)
Email: janys.lim@lhsc.on.ca
https://www.schulich.uwo.ca/paediatrics/about_us/people/faculty/lim_janys.html
Queen’s University / Kingston Health Sciences Centre-Kingston
Sarosh Kahlid Khan, MD, DABPN, FRCPC
Associate Professor, Department of Psychiatry, Queen's University and Kingston Health Sciences Centre
Email: Sarosh.Khalid-Khan@kingstonhsc.ca
https://psychiatry.queensu.ca/directory/faculty-gft/sarosh-khalid-khan
Marc Woodbury-Smith MD. PhD
Neurodevelopmental psychiatrist, Associate Professor
Email: marc.woodburysmith@queensu.ca
https://psychiatry.queensu.ca/index.php/directory/faculty-gft/marc-woodbury-smith
Nova Scotia
Dalhousie University-Halifax
Megan Thomas, MBChB, FRCPCH, FRCP, PhD
Associate Professor, Department of Developmental Pediatrics Dalhousie University; Clinical Co-Lead for the Provincial Preschool Autism Service; Honorary Senior Lecturer, Faculty of Health and Medicine, Associated with the Department of Psychology & Neuroscience- Lancaster University UK
Tel: (902) 470-7300
Alberta
University of Alberta-Edmonton
Francois Bolduc, MD, FRCPC, PhD
Associate Professor, Pediatric Neurology; Adjunct Associate Professor, Medical Genetics, University of Alberta
Tel: 780-492-9713
Fax: 780-492-0723
University of Calgary-Calgary
Paul Arnold, MD, PhD, FRCPC
Director, The Mathison Centre for Mental Health Research & Education; Professor, Departments of Psychiatry and Medical Genetics
Email: paul.arnold@ucalgary.ca
Kara Murias, MD, PhD, FRCPC
Assistant Professor, Department of Pediatrics; Department of Clinical Neurosciences; Department of Psychiatry; Pediatric Neurologist; Department of Pediatrics | Developmental Pediatrics
Quebec
CHU Sainte-Justine; University of Montreal-Montreal
Baudouin Forgeot d'Arc, M.D., Ph.D.
Child psychiatrist; Associate Professor, Department of Psychiatry and Addiction, University of Montreal; Academic Director, Department of Psychiatry, CHU Sainte-Justine
Email: baudouin.forgeot.darc.med@ssss.gouv.qc.ca
https://www.chusj.org/fr/Biographie?id=3eb7a212-f013-469d-965a-fd2fb96b27e6&lang=
McGill University-Montreal
Maryam Oskoui, MD, MSc
Senior Scientist, RI-MUHC (5252 de Maisonneuve site); Child Health and Human Development Program, Centre for Outcomes Research and Evaluation; Professor, Department of Pediatrics, Faculty of Medicine and Health Sciences, McGill University; Department of Pediatrics, Division of Neurology, MUHC
Email: maryam.oskoui@mcgill.ca
Mayada Elsabbagh, PhD
Professor in Neurology and Neurosurgery, McGill University’s Faculty of Medicine and Health Sciences
Tel: 514-398-8011
Email: mayada.elsabbagh@mcgill.ca
Saskatchewan
University Of Saskatchewan-Saskatoon
Dr. Ghita Wiebe, MD, FRCPC
Assistant Professor, Developmental Pediatrics, Kinsmen Children's Centre – Alvin Buckwold Child Development Program
Email: ghita.wiebe@saskhealthauthority.ca
https://medicine.usask.ca/profiles/pediatric-divisions/developmental-pediatrics/ghita-wiebe.php
British Columbia
University of British Columbia; BC Children’s Hospital
S. Evelyn Stewart, MD
Professor, UBC Department of Psychiatry, Division of Neuroscience and Translational Psychiatry; Division of Child and Adolescent Psychiatry; Congdon Family Hospital Chair in Child and Youth Mental Health Research, BC Children’s Hospital; Medical Director, BCCH Provincial OCD Program; Director, Brain, Behavior & Development Research Theme and Investigator, BC Children’s Research Institute; Director of Research, Child and Adolescent Psychiatry, BC Children’s Hospital; Researcher, BC Mental Health and Substance Use Services Research Institute
Email: evelyn.stewart@ubc.ca
Sharon Smile, MD, MSc
Investigator and Division Head of Developmental Pediatrics, BC Children's Hospital Clinical Associate Professor, Division of Developmental Pediatrics, Department of Pediatrics, Faculty of Medicine, University of British Columbia
Email: sharon.smile@cw.bc.ca
Manitoba
University of Manitoba
Andrew Hall MD, FRCPC, MMEd
Assistant Professor, Child and Adolescent Psychiatry; University of Manitoba; Psychiatrist at Manitoba Adolescent Treatment Centre
Email: ahall@matc.ca
Mubeen Rafay, MB. BS, FCPS, MSc
Associate Professor, Section of Pediatric Neurology, Pediatrics and Child Health; Clinician Scientist, ENRICH team member, Children’s Hospital Research Institute of Manitoba; Honorary Academic Faculty, Dow University of Health Sciences, Karachi, Sind, Pakistan
Email: mrafay@hsc.mb.ca
New Brunswick
Horizon Health Network; Stan Cassidy Centre for Rehabilitation-Fredericton
Newfoundland
Memorial University-St. John’s
Tyna Doyle M.D., FRCPC
Associate Professor of Pediatrics, M.D. Memorial, FRCPC; Faculty of Medicine, Pediatrics
Tel: 709-777-4641
Email: Tyna.doyle@easternhealth.ca
Prince Edward Island
Queen Elizabeth Hospital / Health PEI-Charlottetown
Peter MacPherson, MD, MEd, FRCPC
Consultant Pediatrician; Site Lead, Pediatrics
Email: peter.macpherson@mun.ca